tag:blogger.com,1999:blog-1569563406274279498.post3888092842189552846..comments2012-10-30T05:36:58.598-04:00Comments on The life and times of a girl with <strike>RA</strike> MCTD: The ER takes a turn...(update part 2)Michellehttp://www.blogger.com/profile/07002059843689990195noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-1569563406274279498.post-5781518922627781562011-06-06T12:21:55.392-04:002011-06-06T12:21:55.392-04:00Oh, and because of ignorance in the medical commun...Oh, and because of ignorance in the medical community and the general public relating to MCTD, I copied some facts from different websites and printed them out. I keep them with me at all times now. I credit the sources so people can refer back if they choose, but this way the docs don't freak when her white blood cell counts come up low, or her liver enzymes are elevated. And then I don't hear about how we're so lucky that it isn't leukemia. (Which she would likely already have been in complete remission from if it were.)Amadayhttps://www.blogger.com/profile/07951303205524536934noreply@blogger.comtag:blogger.com,1999:blog-1569563406274279498.post-44426510239374068442011-06-06T12:16:58.924-04:002011-06-06T12:16:58.924-04:00I just found your blog via Charly's. I apprec...I just found your blog via Charly's. I appreciate you blogging about your MCTD journey. My 9 year old has MCTD with Dermatomyositis, arthritis, Scleroderma features, Raynaud's and asthma. (I'm hoping it stays asthma.) MCTD sucks, but we can help raise awareness & help people. <br /><br />I would love to hear the rest of your ER story. I'll be looking for your next update.Amadayhttps://www.blogger.com/profile/07951303205524536934noreply@blogger.comtag:blogger.com,1999:blog-1569563406274279498.post-51529904696699596592011-05-19T02:27:46.077-04:002011-05-19T02:27:46.077-04:00OK--so I'll quit worrying! For now. I did te...OK--so I'll quit worrying! For now. I did tell you my Dad's family is Jewish, right?! Worry, guilt. It's genetic.Charlyhttps://www.blogger.com/profile/06331434512541106005noreply@blogger.comtag:blogger.com,1999:blog-1569563406274279498.post-33274861241249450002011-05-18T23:01:30.402-04:002011-05-18T23:01:30.402-04:00you weren't kidding about the stalking...lol! ...you weren't kidding about the stalking...lol! :) Sorry to worry you. No this happened back in April (already twittered you about it, but thought i'd update the blog a bit. :) ) I really should have put dates in the story...woops! From April 15-21 I was in the hospital. Thought I'd tweeted about it, but apparently only updated facebook...will continue the story soon. It was a long time, so a multi-post story... Thanks for the concern!Michellehttps://www.blogger.com/profile/07002059843689990195noreply@blogger.comtag:blogger.com,1999:blog-1569563406274279498.post-85601929918074615012011-05-18T16:58:23.667-04:002011-05-18T16:58:23.667-04:00So this sucketh exceedingly (not to wax scriptural...So this sucketh exceedingly (not to wax scriptural or anything...). Are you still there? Update?! You can e-mail me...or twitter me...but if I don't hear, I'm going to stalk you till I do.<br /><br />CharlyCharlyhttps://www.blogger.com/profile/06331434512541106005noreply@blogger.com